SRNA Rare Disease Day
February 28, 2023
Join us for a Rare Disease Day celebration. Connect with others and listen in during our #RareRoundtable conversation.
Schedule highlights
Connect & Network
Spend some time connecting with others before the #RareRoundtable discussion begins. Discuss what brings you to the rare community.
Networking
Feb 28 05:00PM–06:00PM UTC
https://events.ringcentral.com/cal/0AXSrxXdN9fee2ENAjna17hXkUTCHosted virtually on RingCentral Events (link in the description)2023-02-28T17:00Z2023-02-28T18:00ZConnect & NetworkarcVMTbPfzDtviwEomMj51030Explore Community Stories
Get to know the SRNA community with #ThisIsMe videos.
External URL
Feb 28 05:30PM–06:00PM UTC
https://events.ringcentral.com/cal/2VLWJRlsqAJlX0C2u2sZESQjpUTCHosted virtually on RingCentral Events (link in the description)2023-02-28T17:30Z2023-02-28T18:00ZExplore Community StoriesarcVMTbPfzDtviwEomMj51030#RareRoundtable
Hear from a panel about their experiences with rare neuroimmune disorders and what "new normal" means for a person living with a rare disease.
Stage
Feb 28 06:00PM–06:45PM UTC
https://events.ringcentral.com/cal/RSJQUhlHM3WxidJE4AXLtoOb8UTCHosted virtually on RingCentral Events (link in the description)2023-02-28T18:00Z2023-02-28T18:45Z#RareRoundtablearcVMTbPfzDtviwEomMj51030Take Action
Learn the six actions you can take for Rare Disease Month.
External URL
Feb 28 06:45PM–07:00PM UTC
https://events.ringcentral.com/cal/cyHrTR3Dxm0hP1offMtPPTyytUTCHosted virtually on RingCentral Events (link in the description)2023-02-28T18:45Z2023-02-28T19:00ZTake ActionarcVMTbPfzDtviwEomMj51030Connect & Network
Chat or 1:1 video call with others. Find new friends and share how you plan to spread awareness for rare diseases all year long.
Networking
Feb 28 07:00PM–08:00PM UTC
https://events.ringcentral.com/cal/epEbuLEeII3raERodGbTmZuF6UTCHosted virtually on RingCentral Events (link in the description)2023-02-28T19:00Z2023-02-28T20:00ZConnect & NetworkarcVMTbPfzDtviwEomMj51030Perspectives on Being Newly Diagnosed
Spend some time with GG's story about Transverse Myelitis, get inspired, and consider contributing your own story.
External URL
Feb 28 07:30PM–07:50PM UTC
https://events.ringcentral.com/cal/KSxYoXacVqdgx8TslGLX7x2sIUTCHosted virtually on RingCentral Events (link in the description)2023-02-28T19:30Z2023-02-28T19:50ZPerspectives on Being Newly DiagnosedarcVMTbPfzDtviwEomMj51030
Who we are
The Siegel Rare Neuroimmune Association (SRNA) is an organization that works to support individuals with rare neuroimmune disorders, which are conditions that affect the brain, spinal cord, and immune system. These disorders include Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (TM). SRNA is dedicated to providing support and resources to individuals affected by these conditions, and to raising awareness about these rare and often misunderstood disorders.
Sign Up Today
NMOSD Together: join us for NMOSD Awareness Month event as we bring together individuals, families, and advocates affected by Neuromyelitis Optica Spectrum Disorder for a day of education, support, and community.